Monday, July 14, 2014

Horses and Zebras

I've neglected my blog for a few months, but that doesn't mean God hasn't still been teaching me things through my experiences with MS! This is the loudest lesson I've recently received! I promise I'll share more of these lessons in the coming weeks.

There’s a physician’s adage out there that says “When you hear hoof beats behind you, think horses, not zebras.” It advises that, when seeking to identify the “why” behind a symptom, to first test for the most obvious causes.

Alas, my personal medical history is chock-full of zebras: My puffiness during pregnancy was pre-eclampsia that nearly cost me my kidneys. My post-partum problems were not a simple depression or even an infection, but was in fact undiagnosed MS. Later, my “female problem” was not a result of age or stress (both had been suggested by two different doctors) but rather ovarian cancer. Even when I went to my doctor to find out why I had gone partially blind in one eye, I was told “That’s not the way MS usually acts, so you’ve had cancer?” And we mustn’t forget that it took 25 years and three Neurologists to learn I had MS in the first place. Lots of zebras.
 I have had a single time when I’ve sought medical assistance and been given a straight answer as to the cause of a symptom that had a known, practiced solution – a bad gall bladder. Until last week...

See, I awoke that Saturday morning deaf in one ear. No big deal, really. It can happen in MS, I looked it up. Of course I didn’t call my Neurologist right away for two reasons: 1. it isn’t a relapse until it lasts 24 hours, and 2. it was Saturday. Woke up Sunday in the same state, and I must say I didn’t like what I was reading on the internet, and I was mad. I have been “busy” doing things the past few months – LaughFest, my nephew’s wedding in Connecticut, meeting with my state congress people to promote MS needs, attending holiday celebrations on Easter and the Fourth of July. I’ve done more in the past four months than I have in the previous two years – and now, I’m deaf in one ear?!? I felt like the MS was reminding me that it was in charge of my life.

I did call my Neuro’s office first thing Monday morning, but I had to leave a message, and then wait. And wait. And wait. The nurse called back at around 2:00 to verify the info I’d left in the message, then said she’s inform the person I usually see and get back to me. I asked if it would be yet today, and she said it should be pretty quick. At 3:30 I heard back, and the nurse advised that I call my GP rather than them. Really? The GP?

I told myself that at least my situation wasn’t urgent or that threatening, and that of course I would play the game that Medicare mandates, jump through the GP’s hoops, then spend the next few days getting an MRI, and hopefully start on a round of steroids and hopefully get some of my hearing back! Arrgh!

Tuesday morning I was at the GP’s office, waiting. I had been told the person I was to see was running a little behind – all tolled I waited about 45 minutes to see him. He stuck the light thingy in my good ear to see what “normal” looked like, then around to the bad ear. He started with the standard “never put anything smaller than your elbow in your ear,” advice and told me I had an occlusion in that ear, meaning it was blocked with wax!

I had a common problem that happens to lots of people! I was beyond thrilled and shared my joy with the nice guy. In a few minutes, here came the nurse to irrigate my ear, and in a matter of seconds, my hearing was fully restored! Boom-chock-a-lock-a! It was a horse, after all, and not some wild stallion with lots of buck and fight, but one of those ponies that gentle enough to give rides at children’s birthday parties. I can’t describe my relief.
Now at this point, you might be wondering if I’ve learned to expect horses, not zebras. I have to say I haven’t – I will probably still prepare for zebras as a matter of protection, but I will rejoice every time it’s a horse, and trust that God will see me through, whatever it is!

Friday, March 21, 2014

LaughFest Success!

I had a great time last Sunday night doing stand-up for LaughFest! Of course for me it wasn't stand-up - as I delivered my material from my wheelchair - at the last minute I found I couldn't climb the step to the stage. As with all things MS, it was on to Plan B!


I was touched and humbled by the number of people who came out to support me that night, and I offer a huge thank you to my son Scott, who managed the logistics of getting me to the third floor of the building downtown and back!


Alas, I forgot to ask anybody to video my performance, and I apologize to everyone who couldn't see it live. Shy of that, then, here is the material I wrote for the event. I didn't do everything verbatim, but I managed to deliver the gist, and I got lots of laughs!


Hey, at least I didn’t pull a Jennifer Lawrence getting up here! I am blessed to be an Ovarian Cancer survivor June 2nd will mark 17 years cancer free and what better way to thumb my nose at it than to laugh! Now I also live with MS, an autoimmune disease, so at one point in my life my immune system was too busy attacking my brain to fight off cancer – in short my immune system sucks.



I’m a southern-born girl whose plan was to marry well and throw parties. Seriously. I had my china pattern selected by the time I was 15. Girls from my town don’t get married without a china pattern no matter how big that baby bump is. I had it all figured out.  These hands were going to arrange cut flowers (that someone had brought in from the gardens) and write notes in the morning room. Yeah. Right.



Maybe part of my problem was that I am a contemporary of Princess Diana – man was I jealous of her – she was always out-doing me! The clothes, the pomp, the castle she got to decorate, the fact that she had 10 inches on me…and she apparently didn’t have to worry about bills - oh man I wanted all that! Our lives were on an eerie parallel – she was just weeks older than me, we married within twelve months of each other, we were pregnant at the same time, and we both had two boys. Her marriage started smelling before mine. Then the year I was diagnosed with cancer, what did she do? She died – even then she topped me! I dunno, maybe I’m competitive.



You know, I’m not in favor of the Princess thing that that big theme park pushes. They have that full line of princess of toys and bedding, and when you go to one of those parks, you can pay big money at a special store where you can make your little darling into a princess for day, even if she’s 23 years old.  But really, I don’t think America needs more women thinking they are princesses.  Too, when that little girl gets into her mid-20’s and comes face to face with the reality that she’s not a princess – it just really hurts.



OK, so I may not be a British Princess, but I am a survivor who gets to laugh. TY for laughing with me tonight!
I am blessed!

Tuesday, February 25, 2014

Who’s the Girl with Plans for 4 things in the next 3 Months?

I’ve come to a place where I’m daring to go ahead and commit to do things – which is really a big deal. It started with signing up for a Wellness class through the National MS Society. It was six classes on Tuesday nights, and I was able to make five of the six! It was wonderful to meet new people, ones who are walking (figuratively) a walk similar to mine; to receive and offer encouragement. It was invigorating and validating, and I really enjoyed being with people like me.

It was at one of these classes that I was encouraged to sign up to do stand-up for Gilda’s LaughFest – a fund raiser for Gilda’s Club of Grand Rapids. If you haven’t heard of it – it is the nation-wide non-profit organization designed to help everyone who is dealing with cancer. It was started by Gene Wilder in tribute to his wife, Gilda Radner, who was taken too early by ovarian cancer.  

A few years ago they started LaughFest, where big name comics come into our little town and perform in a ten-day festival at different locations. Past performers have included Bill Cosby, Whoopi Goldberg and Betty White, and this year we have Chris Tucker. I have done stand-up off and on for years, and have wanted to participate in LaughFest since it came about – but have always been too physically maxed-out to consider it. Well, with this new encouragement, this year I submitted my application.

To be fair, I front-loaded it with the fact that June 2nd will be 17 years since I was diagnosed with ovarian cancer, and laughter is a great way to thumb my nose at it. But I was able to share a bit a video from You Tube of me doing MS stand-up in Boston, proof to support the notion that I could hold my own on stage for this. And I was chosen to be one of the community participants! I get five minutes at The B.O.B. (Big Old Building) in Grand Rapids on Sunday night, March 16th! Check www.laughfestgr.org for more info. Thankfully, the Community Showcases are free.

I was totally OK with being wiped out as a result of this, knowing that my next big thing wasn’t until the end of May, when my nephew gets married. I know that LaughFest is going to take it out of me, but so what? It’s my energy and I’ll use it the way I want!
Well, then I read about the MS Action Day, where people with the disease go speak with our state representatives about things they can do to make it easier for us. My mom has worked with state congress people her entire career, so this is right down her alley and I knew she’d love to do it, too. It’s March 26th, an hour+ away from where I live. That’s only ten days after LaughFest, but so what? I’m doing it!

Then I found this little craft for Easter on the internet – little edibles that are so cute – but I have no grandchildren to justify the purchase of Twinkies and Peeps. Well, thanks to one of my new MS buddies from the Wellness classes, I might get to make some for a local coffee shop for Easter! Easter is the 20th of April this year, so I’ll still have weeks to rest up for my nephew’s wedding in Connecticut - the most important "happening" of my year.

Who’s the girl with so much to do in the next three months? This girl! That I have the confidence to put these things on my plate – I can’t tell you how huge this is. Don’t get me wrong – I will be a limp wash rag for days after each one of these things. And a huge reason I can decide to do these things is because I don’t have to grocery shop, or cook, or clean, or try to work.
But to dare to agree to do so much in March and April, and make a wedding at the end of May is…?  I can’t even think of a word to describe it. Awesome? Fantastic? Wonderful? Exciting? Yes, plus.

Blessed. That’s the word. Blessed that I’m able, and blessed that I can trust that I can do all these big things. There have been many months when trying to do just one of these was too much to entertain.
 
God is Good.